Tuesday 4 March 2014

Donkeys, Pancakes and Big Brothers to be proud of!


Well if we could bottle the support and well wishes we are getting from people and give it to Lyall for breakfast on 13th then he'd sail through the operation and recovery period with no problems!

He had his last trip to donkey riding today and all the staff, volunteers, other parents and one of the teaching assistants were absolutely lovely and wished him luck and well wishes. It was so touching and we are so grateful for all this support. 

Then it was home for tea and Lyalls first ever pancakes. He didn't orally feed until he was 3 and took a while to cope with some textures. Today however he had no problem demolishing 2 pancakes with ice-cream and chocolate brownie. He loved watching Sharron and Max tossing the pancakes and had lots of giggles with Dan who he does like to boss around!

We explained more stuff to Dan and Max about the surgery and talked through with them what they'd like to do on the day of surgery and on the day Lyall is woken up. Dan wants to be at college as he finds it a good distraction. Max is undecided as to whether he will go to school or be with Grandma and Grandad but whatever he chooses is OK by us. All this is hard for them. They have seen and been told things with Lyall that are so hard to deal with and still find it difficult when he is in hospital. Max doesn't even want to talk about the possibility of the operation being successful as he says its too exciting and would be so disappointed if it failed. We are incredibly proud of both of them and whilst there have been tough times with Lyall they each have their own unique bond and relationship with him. They are both so compassionate and caring and are really fantastic big brothers. Lyall hasn't got many words but the names of Dan and Max(who he calls Baah) were his first! 


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