Wednesday 12 March 2014

One more sleep-(though doubt there'll be much sleeping)





We may not sleep tonight but lets hope these 2 people are. This is Mr Knight the surgeon and Dr Bew the anaethetist. Dr Bew has been putting Lyall to sleep since 2009 and is absolutely lovely-she also happens to be called Steph! Mr Knight has been tinkering with Lyalls airway for 18 months and wouldn't be doing this operation if he wasn't confident of success. Lyall couldn't be in safer hands.

Lyall is still oblivious although must keep processing the words "trachy out" as he has once again spent the day pulling it out at every chance he gets. He's had another lovely day, the high spot being a surprise germ free delegation of his friends from playgroup who brought him a lovely card that had pictures of all his friends on. Also his 1-1 from playgroup, Helen has brought him a banana-his favourite fruit.Seems they have a surplus whilst he has not been there for snack time! 

We've packed his suitcase-its mainly full of various lucky items we have collected over the years plus new ones people has brought him for this surgery. We have the lucky Buddha that max brought him from the pound shop when he had his first emergency heart surgery at 4 weeks old and the love catcher that we put on his cot to catch all the love being sent by people-think it will be kept very busy through this surgery as the support we are getting from people is overwhelming.

Lyall will once again be wearing his Superman onsie tomorrow and Oliver the trachy monkey is delighted that thanks to Helen and Helen he too has a superman outfit. Oliver is also having reconstructive surgery tomorrow and hopes to become trachy free too!

Our feelings tonight are fairly indescribable. At teatime it suddenly hit Max that when Lyall comes home he hopefully won't have his trachy-the realisation of what that may mean for Lyall and us all are hard to imagine.

For 4 years and 15 days that little plastic tube has been Lyalls lifeline, his airway, the thing that saved his life and for that reason we love it. 

So tomorrow we face this next challenge.  







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