A difficult day

Just a quick update tonight as we are exhausted and really flagging.

Lyall is not doing very well. He has very thick secretions, high temperature, high heart rate and low SATS. Whilst they have not got the results back to say what infection he has it is fairly obvious he is not well.  He is requiring loads of physio and is on strong antibiotics. They have taken bloods and are testing his urine to try and isolate what it is.

There has been no weaning of ventilation, sedation or paralysis drugs as he is too poorly. he may go to theatre tomorrow so the surgeon can assess how the graft is healing but is unlikely to be taken off ventilation as he would not cope with breathing without his trachy with an infection.

It's been absolutely heart breaking to see him struggle and feel there is so little we can do for him. We have haunting worries about whether he is in distress, whether he is lying there wondering what the hell is going on and why aren't we making him feel better. There have been some tears today from us and it's been hard to cope with. Max has found it really hard and has lots of questions many of which we haven't been able to answer.

Just hoping he picks up tomorrow- the thought of him being sedated for 5 days was difficult to cope with, now it's going to be longer makes it even more unbearable. We are missing him so much and would just love to have him awake and being his vibrant, cheeky, determined self again.

So please keep Lyall in your thoughts and hope tomorrow brings a better day.