Lyall has had a much better day. His infection levels have gone down and he is responding well to the antibiotics. He is managing on a very low level of oxygen and the number of breaths the ventilator gives him each minute has been dropped from 22 to 10 and he is now doing lots of breaths for himself. He has been taken off the paralysis drug again and a new sedation drug introduced to hopefully keep him steady and not pull his tubes out. He had one little dancing session today but has otherwise been settled.
The surgeon is pleased with all of the above and his plan is to take him back to theatre on Thursday morning, check out his handiwork then take out the vent tube and see how he copes. EEK! He is still warning us that initial success is no guarantee of long term success but he really hopes it will work. He says Lyall will have to adapt his breathing lots and his airway is still small, he may have a stridor and noisy breathing and may just get so tired that a return to the trachy may have to be considered to give his airway time to grow. We just have to hope Lyall copes.
A quick mention of the fantastic nurse we have had for the past 3 nights and tonight. She is so parent/child centred and whilst it's always so hard to leave Lyall at night she makes it much easier. She's fairly new and if she carries on like this will go far. Thank you Grace.
We are very very tired, to the point that I spent 10 minutes trying to get into the wrong car in the hospital car park today!
Lots of nerves about Thursday and tomorrow will be a long day. Looking forward to seeing our little man again as we are missing him sooooooooooooooo much!
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