Lyall went to theatre at 10.50. We're not sure how long he will be gone but they will phone us when he is being transferred to PICU. They have warned us that he will have lots of lines and tubes in, we have seen it before but not on a vibrant healthy 4 year old and it's going to be hard.
Lyall was a monkey right up until the pre med-still convinced it was his job to pull the trachy out and did it once at home, once in the car, 5 times on the ward and once in the corridor whilst we were trying to distract him!
As per usual when we are here we have bumped into numerous people who have cared for Lyall over the years. Today we saw the obstetrician who scanned me weekly from 20weeks and was so so lovely, respectful and caring. She hadn't seen Lyall since he was tiny and knew little of what he has been through over the past 4 years but was so supportive and excited for him. A matron, numerous nurses and even an MP have wished us well and the excitement they feel for us and Lyall about the potential of this surgery is wonderful.
A report has come out today saying the LGI is safe, we don't need a report, we know it and Lyall is proof of it.
Will update later when we know more about Lyall.
Hope it's not too long, try and rest, he'll need you both when he wakes up xx
ReplyDeleteThinking of lyall. Leon was talking about him today and I think they made a video for him at playschool. We also sang for you at choir tonight thanks to your mum!
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