Its getting better and better!

So its slowly sinking in-Lyall doesn't have a trachy and that opens up so many possibilities...........!

Today started with a visit from his brilliant and lovely speech therapist who was very excited about the new sounds he is making especially "G" and "C" as apparently they are really hard yet his are perfectly formed.

Then his community nurse came and she was equally happy to see him without his trachy. He was weighed and it was great that despite all he has gone through recently he is still the same weight he was last time she came. She also thinks he's got much taller so clearly he did some growing despite being sedated and ventilated for a week.

Then it was play time..........!

Lyalls friends Aiyana and Thalia came to play and it was just fab. Previously it was hard looking after other kids as someone had to focus on Lyall all the time. Thalia was very attached to Lyalls suction machine and given half the chance would open up the bag and lunge towards him to have a go at suctioning. Shes probably the only person who is disappointed its gone. She was however fascinated by his gastrostomy and after watching him have some water down his tube went off and constructed her own feeding tube construction out of some pieces of marble run!

We then did baking, painting, music, and even had moments of them playing in another room without us watching. Lyall and Thalia were chatting and giggling and when we went to check as things had gone quiet they were playing happily with the contents of the "sticking" drawer which were spread in a beautiful mosaic pattern across the floor! The painting was so lovely as today it didn't matter when they painted each other, even when Thalia did some lovely blue brush strokes across Lyalls neck!

Grandma and Grandad also came to visit and are building up to having Lyall on their own later this week-something that has never been able to happen before!

Then Thalia and Aiyanas parents, Kevin and Ailith came for tea. Ailith is recovering from running the Manchester marathon yesterday for our Leeds Down Syndrome group and raising over £1000-what a star she is!

We finally cracked open the bottle of prosecco they left on our doorstep on the day of Lyalls operation as we have lots and lots and lots to celebrate.