1 week to go!

Today has been a funny kind of a day. Its one week to go until the surgery and from the moment we woke up its dominated our thoughts.

By this time next week the operation will be over and our little man will be ventilated and sedated in PICU and we will be waiting. The period he is in theatre will be tough, we've been through that enough times to know that its surreal. We've been through seeing him ventilated and sedated but this will be so different. Last time he was a tiny and very very poorly baby who had been through life saving heart surgery.

This time we are handing over a vibrant and lively 4 year old who healthwise is the best he has ever been. He has no understanding of what is going to happen, we do keep showing him a photo of the surgeon and saying Mr Knight is going to put him to sleep and when he wakes up he won't have a trachy but he just shakes his head and says no!

The post op period will be so hard. We'll miss his little voice, his signing, his laughter, his cheek, his sense of humour and his all round loveliness and smiles! But we'll be hoping beyond hope that the surgery will enable us to have all of that plus more. Neither of us are able to get too excited about what might be-we have to get through the surgery and post operation bit first and if Lyall is true to form that won't be plain sailing.

This week is only going to get harder and Lyall will probably get slightly annoyed by the random bursts of love and kisses we will keep smothering him with and the fact we both seem able to cry at the silliest things. But by this time next week we will have begun the process and hopefully be one step closer to having a trachy free boy!