Today started with a visit from Lyalls friend Thalia and her mum Ailith. They shared chocolate brownies then we all went to the woods. The pleasure they got from climbing a big hill then running down together was infectious and there were lots of lovely smiles and giggles. Thalia is obsessed with Lyalls suction bag and loves to try and give him a suction although he is less keen on the idea-think she'll probably be the only person slightly disappointed if the surgery doesn't work!
Then we came home and the postman delivered a beautiful present for Lyall. Our friend Clare has over the years sent Lyall the most wonderful gifts. Pictures for his wall, his fearless lion cuddly toy who has been with him through the darkest times, his first superman outfit and numerous cards. Despite living 200 miles away she has been an amazingly supportive friend and has been with us through so much. Today she absolutely surpassed herself with Lyalls latest pressie-a personalised book with a boy who looks like Lyall, a lion, rainbows and the final page has words that are so perfect we both sobbed when we read them.
"He felt so tired and weary, yet also full of joy. What a quite amazingly brave and courageous little boy-called......LYALL"
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